Here's the latest from Lucca's mother. Tough time emotionally so your prayers are appreciated.
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February 6, 2014
3 minutes ago
Wednesday Lucca had her post therapy scans. The results came back....ok?? It's complicated so here it is. Her MIBG was negative, this is a good thing. Her bone marrow results were not back but are not a big concern because they have been negative from the start. Her scans showed abnormalities in the liver. If you remember from the beginning the cancer had invaded her liver quite a bit. It (the liver) has been an ongoing concern. They had hoped the radiation would reduce the amount of abnormalities and while I believe that it has there is still quite a bit. So Dr. Cohn said she wanted to present to the tumor board, including the surgeons, the debate of whether or not to biopsy an abnormality or wait for three months and repeat scans. The consensus was to wait. The reason....if you biopsy one abnormality it only gives you results for that abnormality. It doesn't mean every abnormality is the same. So if one comes back as scar tissue it doesn't mean that there is no active cancer in the liver it just means that sight is ok. So the only way to really know is to wait and see if a tumor grows. :( Scary...is the best way to describe that. Yet there is no other choice or way of knowing other than waiting. So she will have a check up in 4-6 weeks and scans in three months.
I'm not sure how I feel about everything. It is a bit strange. She is done yet she isn't. And honestly I just have a feeling this is not over. I think we are on a break. Many of you will try to discourage me from thinking this but I'm a bit wiser on the cancer scene now and I feel like I know how the road goes. It's never really over. You are never really cured forever. That's probably why they call it remission. And Lucca is not currently considered in remission. So there is room to be greatful, we are in a better place. There are less medications, no hospital stays, and not making her miserable to make her better. Only time will tell what is to come. I'm not taking anything for granted. I know our days could be plentiful but they could be numbered. I enjoy hearing her and her siblings laughing and screaming. I sometimes cry as I watch them interact with one another because I'm scared she won't be here forever. I squeeze her tight when she cries and wants to be held. I wake up regularly through the night making sure she is breathing next to me. My bed has at least 2 of our 3 children in it each night. I have considered making our master bedroom just a bedroom with everyone's bed. Obviously no one wants to be alone, so why not? But I probably won't. We will just continue to pile up in our bed.
Our journey has been long. I'm thankful Lucca has come so far. She is doing amazing. I don't mean to be negative but it is important for me not to get too excited. Cancer has no feelings. Cancer is powerful and ugly and has taken more children's lives and adults lives than we can imagine. It seems to be taking over. So I don't want to kid myself. So I'm just going to try to enjoy today,each day and have Pharrell's Happy song as my soundtrack each day. (If you don't know that song you should YouTube it).
I will continue to keep you posted as things progress or change. But today things are good. Thanks for you prayers and support!
Topic: Lucca's latest test results (Read 1326 times)
