Wish there was something magical to say or write... but there isn't. :(
What you describe sounds like a living hell. How we individually deal with medical issues and problems cannot be judged by others outside the situation.
Sometimes, we make our own hell and you know that. How we interpret our circumstances seems as varied as those who are challenged. I see some smile thru everything that hits them and wonder, "how?"
You've said nothing about medical opinions on what's up with your guts? I had a friend in MT who had Giradias (?) (beaver fever) and was in your similar "sounding" shoes...
I read your words over... I see "I" in a lot of sentences... and "can't" and "need".
You've set some high bar hurdles there about what others will or won't do and whether you can or cannot exist.
I'm no counselor, but it seems that surely points to YOU wanting to have things go a specific way and at times, we must "surrender" 100% to His Will and just ask for strength, not for our problems to be within our coping but coping to endure our challenges.
That was a lot easier for me to type than it is for ME to live...so I truly do not mean that in anyway condescending or mean...Surrender to Him is the hardest thing in life...
Fear is a terrible task master...fear of losing a loved one, wife, divorce, death... when it involves another person's choices, all we do by focusing on OUR fear is to create 'desperation' in ourselves and our interactions with those closest to us. Desperation smells and the stink clings to everything... and drives people away.
There is nothing to fear but FEAR itself!
Go with God, Friend. May you find healing and peace!
Keep the Son in your eyes and His Will your goal.