Got this from Lucca's mom. Looks like Lucca has hearing damage & also is still having stomach/intestinal issues.
Thanks prayer warriors!
" Wow! It has been awhile since I last updated. Lucca has continued to do well over the last month. Her walking is improving and she is talking a lot more. She will repeat words and even follows some commands. We recently went to the audiologist and it seems her left ear has gone from a mild to moderate loss up to severe. I do not seem to notice. Now that I am aware I pay attention to it but it is not like she is obviously different from another baby her age. We have started the process for hearing aids. We met with a local audiologist Friday and took molds of her ears. The hearing aids are small and will be pink and white.
She has had some belly issues. It's unclear what the problem is completely at this point but they have decided to have her be lactose free. So far it has helped a bit but she still has trouble and her bottom is on fire :( . I have lathered and lathered for a week and no improvement. I know it hurts.
She is doing some weird stuff, at least I think it is weird. She eats like a football player. Seriously. We wake up and she eats, she eats breakfast with everyone, a snack, lunch, she naps, eats again, has a snack, eats dinner, and has 5 bottles of almond milk a day!! They weighed her and she is still 21 lbs. I don't know where she puts all the food but seriously she eats a lot!!
She also has bad balance. I compare her to a drunk. I call her drunk baby.
She will be walking along and all of the sudden tips over. Or runs into a wall. Then sometimes she just lays on the floor and puts her head down. I have told all the doctors. They said maybe the ENT can check the fluid in her ears and give us more info. I hope so.
We started First Steps( a government funded program for preschoolers with delays). They will come see her 2x a month. We are teaching her a few signs and trying to get her to respond with words rather than grunts and cries. She is doing pretty good. She tells me to come everywhere and for everything.
We will go for post therapy scans on Wednesday. It is a bit scary. Yet I know most likely things will come back clear. But there is anxiety. And for me I know what happens in the cancer world. Maybe your clear today but that doesn't mean your clear tomorrow or ten years down the road. So that's what is scary.
I really hate cancer! It's such a silent deadly killer. I feel like we are all dead men walking. It's a horrible thing to think but it seems to surround me lately.
I am happy to have my baby girl though. And she seems to be thriving. She loves her family. She gets so excited when Ben or Daddy come home. She loves her sister. She has started singing too. It's hilarious. Sophia gets obsessed with princesses. So for awhile we watched rapunzel (Tangled) everyday for like months. Then it was Ariel and now Frozen. We have the Frozen soundtrack and Sophia will have me play it over and over while she dances and sings. She makes me put Lucca in a princess dress and she is in one. Lucca has started to sing along. I hear her do Ariel's ahhh a ahhh ahh ahh. And she will get super excited for the Frozen songs. It's so cute! And Sophia is getting so big and becoming so sweet. She no longer holds the crazy baby trophy Lucca has taken over. I can't take her anywhere. She is everywhere. And she gets so mad when I say no. She arches her back and screams. And she never slows down. And She climbs on everything. And with bad balance, well it doesn't always work out. Poor baby!
So far 2014 seems to be going well for us. I hope it is for all of you too. I will be sure to post on scan results when we have them. Thank you for all of you who still hold Lucca close to your heart. Hopefully her journey is over but just in case keep her in your prayers if you can."
Topic: Prayers for Lucca's hearing please (Update 5-1) (Read 2505 times)
